Australian Bleeding Disorders Registry Annual Report

The Australian Bleeding Disorders Registry Annual Reports are produced through the collaboration of all members of the ABDR Steering Committee and their respective member organisations.

The report provides background information on bleeding disorders and the clinical and other management structures in place in Australia to assist in the treatment and management of patients with these conditions.

The report describes the number of patients registered in the ABDR and those that received product during the relevant financial year and breaks this information down by diagnosis, severity, age, geographical location and product use.

The reports have a number of caveats as to the completeness and accuracy of the data contained, and readers should take these into account when using the data, namely:

The potential for patients with minor bleeding disorders not to be captured in the registry
Not all product use for those patients in the registry is recorded
A number of fields will continue to be refined as the system evolves and
Not all data fields have been completed consistently across HTCs.

These caveats will be addressed on an ongoing basis by the Steering Committee.

Further information about AHCDO is available at www.ahcdo.org.au

Further information about HFA and materials relevant to patients can be found at www.haemophilia.org.au

ABDR Annual Report 2010-2011
PDF Document (2.1MB) | Word Document (4.5MB)

ABDR Annual Report 2009-2010
PDF Document (3MB) | Word Document (4.1MB)

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